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Genetic and Genomic Consultation: Are We Ready for Direct-to-Consumer Telegenetics ?
Li Du1; Shmuel I. Becher2
2018-12-03
Source PublicationFRONTIERS IN GENETICS
ISSN1664-8021
Volume9
Abstract

Telegenetics, the application of telemedicine in the context of genetic services, is a growing market. One of the recent developments in this field is the use of direct-to-consumer (DTC) marketing to promote and advertise genetic and genomic consultant services to consumers. Using Google.com, we identified providers that promote their telegenetics services online. By analyzing their websites, we identify and examine key points regarding DTC telegenetics: how are telegenetics services portrayed, how is informed consent obtained, and what protections are offered to clients' personal health information ? We found that the portrayal of a wide range of telegenetics services on providers' websites is extremely positive. The risks associated with the implementation of telegenetics were rarely mentioned. Consent forms were often unavailable and did not cover all of the relevant information. The measures for protecting clients' personal health information by telegenetics providers were found to be generally inadequate and weak. We concluded that DTC telegenetics may increase patients' access to genetic counseling with affordable costs. However, before further developing DTC telegenetics, more research and regulatory improvements are required to guarantee truthful advertising, ensure informed consent, secure personal health data sharing, and warrant adequate privacy protection.

KeywordTelegenetics Telegenomics Direct-to-consumer Genetic Services Risks And Benefits Privacy Informed Consent
DOI10.3389/fgene.2018.00550
URLView the original
Indexed BySCIE
Language英語English
WOS Research AreaGenetics & Heredity
WOS SubjectGenetics & Heredity
WOS IDWOS:000452098500001
PublisherFRONTIERS MEDIA SA
Scopus ID2-s2.0-85083758132
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Citation statistics
Document TypeJournal article
CollectionFaculty of Law
Corresponding AuthorLi Du
Affiliation1.Faculty of Law, University of Macau, Macau, China
2.School of Accounting and Commercial Law, Victoria University of Wellington, Wellington, New Zealand
First Author AffilicationFaculty of Law
Corresponding Author AffilicationFaculty of Law
Recommended Citation
GB/T 7714
Li Du,Shmuel I. Becher. Genetic and Genomic Consultation: Are We Ready for Direct-to-Consumer Telegenetics ?[J]. FRONTIERS IN GENETICS, 2018, 9.
APA Li Du., & Shmuel I. Becher (2018). Genetic and Genomic Consultation: Are We Ready for Direct-to-Consumer Telegenetics ?. FRONTIERS IN GENETICS, 9.
MLA Li Du,et al."Genetic and Genomic Consultation: Are We Ready for Direct-to-Consumer Telegenetics ?".FRONTIERS IN GENETICS 9(2018).
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